Veterans of Gulf War Continue Their Battle for Truth and Transparency

 July 27th hearing of the US House Veterans Affairs Committee- Subcommittee on Oversight and Investigation  can be seen and all testimony read at following site:

http://veterans.house.gov/hearings/hearing.aspx?newsid=601

A new review article by Nora Eisenberg reviews some of the feedback from this past week, the article and link follows.

As stated the only new item that occurred was the evidence presented on the DU health issue.  The VA if they are to rebuild trust must immediately clean house of those that have impeded progress on the Gulf War illness issue.  If certain personnel were removed that have stood in the way thru several years, that would send a clear signal to all that change is occurring.  So far only one individual has been removed.

Second, the lack of full veteran involvement of the Gulf War Veterans ‘Advocates is noticeably a problem.  The VA needs to involve a number of Gulf War Veterans not just the ones that have testified but others with talents in the area of medical expertise, research knowledge, and benefits.  It would show an ability to truly listen to the veterans.  Why not include outside veterans advocates to their internal task force and to the review of research proposals?  And please do not let this be a limited few.  This has historically been what has occurred and the gulf war veterans want a more inclusive rather than elite exclusive number.

Third, obviously there is a real need for the coordination, of the stakeholders.  The example of research being approved in a vacumn by the headquarters of the VA Research Division and  that the Research Advisory Committee for Gulf War Illness was not even aware of the three research projects approved for funding and then a press release announcing same shows total disregards to the law that set up the VA-RACGWI.  Again these three research projects do not meet the needs and again shows the deaf ear and the problem within the VA leadership.  We suggest these projects be stopped and defunded immediately and policies inacted immediately to allow for interaction with the RACGWI and that their feedback on each proposal be heard before final decisions and press releases are issued.

We gulf war veterans want to see proof of change at the VA.  It is time the VA change and grow into a truly dynamic and responsive agency.  Listen to the veterans, treat them as co partners, and respond to them.  Let them know their words and suggestions are being heard. 

Again we await action from the VA to show that we have reason for hope vs Smoke and Mirrors yet again.  The battle appears to continue between appointed leadership and civil servants that block progress.

Here is the recent article from Alternet author Nora Eisenberg:

AlterNet / By Nora Eisenberg  Witness: ‘Cabal’ at VA Is Killing Veterans
At a hearing last week, experts told Congress that VA staff was “intentionally delaying research and treatment for our veterans.”

illness.http://www.alternet.org/health/147695/witness%3A_’cabal’_at_va_is_killing_veterans?
July 31, 2010 |
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Despite the recently announced intention by Secretary Eric Shinseki and his Chief of Staff, John Gingrich, to change the “culture” of VA, the agency is in the grips of a rogue bureaucracy that bypasses congressional oversight and sabotages veterans interests and health. This was the claim made by several speakers at last Tuesday’s hearing of the House Committee on Veterans Affairs Subcommittee on Oversight and Investigations to consider Gulf War illness and “Dissatisfied Veterans.” Some 250,000 veterans of Desert Storm are disabled from the a multi-symptom, multi-system sickness associated with exposure to toxins during deployment. service. According to Paul Sullivan, Executive Director of the veterans advocacy group Veterans for Common Sense, “a cabal of VA staff” is “intentionally delaying research and treatment for our veterans.”

Anthony Hardie, another Gulf War veteran and advocate, testified that VA bureaucrats “simply disregard the oversight …created specifically” by Congress to bypass the entrenched bureaucracy in VA and the Department of Defense, which are “at the root” of many of the problems facing Gulf War veterans. While Hardie said that bureaucratic end-runs of both congress and agency programs might be be a matter of old-timers resisting new ways, he did not rule out less benign explanations including officials “having their own agenda.” and undermining reform because of “wanting this Administration to fail.”

As a member of the Congressionally-mandated Research Advisory Committee (RAC), Hardie said he was surprised and disappointed by recent VA actions taken without appropriate consultation with RAC and the Institute of Medicine (IOM) committee charged with Gulf War research advisement. Last week, Hardie learned only from a press release published on a veterans advocacy site that VA would be funding specific research programs. The projects, budgeted for a meager $2.8 million, pursued discredited approaches to Gulf War illness, promoting psychological causes and psychological remedies, even as both RAC and IOM have reported that VA and DOD’s long-held stress theory of GWI is unfounded and that compelling data link the disease to toxic exposure. Moreover, Hardie said, the VA press release promulgated misinformation, claiming that “almost a quarter” of GW veterans suffer from Gulf War illness, when the IOM committee that works at their direction, has clearly stated that 35.9% or over a third of Gulf War veterans suffer from the multisymptom, multisystem disease. Meanwhile, Hardie and most veteran panelists decried the fact that the most substantial and productive research in Gulf War illness, conducted by epidemiologist Dr. Robert Haley at University of Texas Southwestern Medical Center, was suddenly and summarily de-funded last August. As early as 1994, in research the government would not fund and that Ross Perot stepped in to support, Haley had demonstrated through scans the distinct brain malformations in Gulf War illness sufferers consistent with neurotoxic exposure—and not wartime stress, a theory that VA continues to entertain in its recently announced research projects..

Veterans and other stakeholders were excluded from the Task Force charged with reforming Gulf War research and treatment as part of VA’s overall reform, panelists complained, and in committees in which they were included, they were ignored. According to Gulf War veteran and Desert Storm Battle Registy director, Kirt Love, the short-lived (2008-9) Advisory Committee on Gulf War Veterans on which he served was an “ole boys club” interested in pleasing the chairman, a former DoD and VA assistant secretary turned lobbyist/adviser to companies contracting with the government.

Secrecy, concealment, dis- and mis-information, inadequate and inaccurate record-keeping and outreach, misguided and redundant research. These and more continue to plaque VA, the Subcommittee heard, leaving profoundly ill Gulf War veterans without appropriate treatment or benefits a full 20 years after their service.

Last November, after two decades of VA obstruction and obfuscation, VCS filed Freedom of Information Act (FOIA) requests with VA to find out who “impeded” Gulf War illness research and the scale of their internal “sabotage.” Last month, having received no response, VCS filed a FOIA appeal to obtain particular documents that could disclose the perpetrators and the extent of their crime.

Nora Eisenberg is the director of the City University of New York’s fellowship program for emerging scholars. Her short stories, essays and reviews have appeared in such places as The Partisan Review, The Village Voice, The Los Angeles Times and Tikkun. She is the author of three highly acclaimed novels. Her most recent novel, When You Come Home (Curbstone, 2009), explores the the 1991 Gulf War and Gulf War