VA RAC GWI Meeting in DC Next Week- Shout Outs Point Statements

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Twenty years from ground War-Will they (President,Congress, VA, DOD) ever acknowledge our service made us ill and thousands have died? Will fast track compensation.  Will they answer Health Care needs?  Will they be proactive?

VA-RAC-GWI  Meets in DC

VA Secretary Unavailable? Unacceptable

VA Doctor – Neurosurgeon- at headquarters DC-that served with us in theater NOT invited! Why NOT?

All VA Researches that are funded or have been funden NOT to be in attendance?

Time past due for a VA conference of all researchers and health care providers that want to help including civilians!

Extemely limited time for rest of veterans or others to give public comment.

NO VIDEO or LIVE VIDEO Conference on Internet or C-Span.   No ability to receive video recorded public comment.  NO WEB Conference.  NO SKYPING

Heads of VSOs and committee members comments need to give way for Open PUBLIC COMMENT and REALLY Listen to veterans especially those that have not had that opportunity!  We need to hear from more VA funded researchers in order to encourage their knowledge and communications.  We need to hear from all researchers incluiding ones doing DOD CDMRP FUNDED.  THOSE FUNDED and NOT FUNDED. We do NOT need anniversary ceremonial like Presidential library.

Where will the media be?

My sincere apologies, I really like the work that has been done by the VA RAC GWI and I was one on hill that went door to door many times over to get cosponsosrs and to make the bill that mandated VA RAC GWI into reality.  But….

THIS IS NOT IDEAL

YET there hopeful will be some good information and sharing, but more work is needed.

Here is the AGENDA

Public Meetings of the VA RAC GWI, February 28 – March 1, 2011

Monday, February 28, 2011

LOCATION: U.S. Department of Veterans Affairs, 810 Vermont Avenue, Room 230, Washington, DC

Agenda

8:00 – 8:30 Informal gathering, coffee

8:30 Call to order Mr. Jim Binns, Chairman, RAC-GWVI

8:30 – 8:55 Veterans Service Organizations’ Remarks on the 20th Anniversary of the Gulf War – official representatives of the American Legion, VFW, DAV, VMW, and PVA

8:55-9:20 DOD/CDMRP Gulf War Illness Research — Dr. Melissa Forsythe, COL, USA (Ret.) of the DOD Congressionally Directed Medical Research Program

9:20-10:00 National Survey of GW veterans — Dr. Aaron Schneiderman, VA Office of Environmental Agents

10:00-10:15 Break

10:15-11:45 VA Gulf War Research Program and panel discussion with key investigators with VA Gulf War Steering Committee participating —  Led by Dr. Joel Kupersmith, with  Dr. Timothy O’Leary, Dr. Dawn Provenzale, Dr. Christopher Brady, Dr. Maxine Krengel, staff of the VA Office of Research and Development, Dr. Aaron Schneiderman, and staff of the VA Office of Environmental Agents

11:45-12:15 Chief of Staff’s Remarks on the 20th Anniversary of the Gulf War — Hon. John Gingrich, Chief of Staff, U.S. Department of Veterans Affairs

12:15-1:00 NIH Undiagnosed Disease Program —  Dr. John Gallin, Director, NIH Clinical Center, NIH Undiagnosed Diseases Program

1:00-2:00 Lunch

2:00-2:30 Gulf War Veterans’ Perspectives on the 20th Anniversary, by Members of the RAC-GWVI — Rev. Joel Graves,  Mr. A Hardie, COL Marguerite Knox

2:30-3:15 Washington WRIISC research update — Dr. Mian Li, VA Washington, DC

3:15 Adjourn

DAY 2

Tuesday, March 1, 2011

LOCATION: U.S. Department of Veterans Affairs, Lafayette Building, 811 Vermont Ave. NW, Room 1143, Washington, DC   —     **NOTE CHANGE IN MEETING LOCATION FOR THIS DAY**

Agenda

8:00 – 8:30 Informal gathering, coffee

8:30-9:15 Palo Alto WRIISC research update — Dr. Wesson Ashford, Palo Alto VAMC

9:15-10:00 Palo Alto WRIISC complementary and Alternative therapies for GW veterans  — Louise Mahoney, Palo Alto VAMC

10:00-10:45 New Jersey WRIISC complementary And alternative therapies for GW veterans —  Dr. Anna Rusiewicz , Dr. Gudrun Lange, staff of the VA New Jersey Healthcare System

10:45-11:00 Break

11:00-11:45 Washington WRIISC complementary and Alternative therapies for GW veterans — Dr. Jeanette Akhter, VA Washington, DC

11:45-12:30 Committee discussion led by Mr. Jim Binns, Chairman,with Dr. Kimberly Sullivan and the members of the RAC-GWVI

12:30-1:00 New Research Update — Dr. Kimberly Sullivan and the members of the RAC-GWVI

1:00-1:30 Public Comments

1:30pm Adjourn

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